Saturday, March 21, 2009

Spammy Spam Spam

I've spent all morning spamming the crap out of my friends, family, FB friends and MySpace I figured why not here as well. I feel bad, I feel like I'm shoving this fundraiser down peoples throats and I don't want to do that. At the same time, I want it to be a success. I want people to show up, I want people to learn just a little bit more about the disease b/c it's scary stuff. I want to do something good and helpful and I want to, maybe, make it a little less scary for anyone who deals with this on a daily basis.

One of my best friends was diagnosed with Scleroderma 3 years ago. At the time her son was only 6 months old and she was told she had this life threatening disease with a very high mortality rate. She was 24 years old at the time. I can't even imagine hearing those words. I broke down when I heard, so for her and her family, I just can't imagine.

She's been lucky since then, it's only effected her on the outside. The thing with this disease is that it hardens your skin but it can also do the same to your organs. The caught hers early, so as with most of these diseases, she has a better chance. The first 5 years are supposed to be the worst...I hope that is true for her. I hope that in 2 years things will be looking up, maybe she'll regain use of her right hand, since in the past 6 months it has completely seized. Maybe in the next 2 years she'll be able to walk and play with her son without having to stop and rest every few minutes.

So, at any rate, here is my spam. I'm taking out the address and what not b/c well, there are still crazy people out there and I don't want them crashing my party :) If you know anyone in Northeast OH...please pass this on to them. Send me a message here and I'll get you and them all the information.

1st Scleroderma Photo Shoot Fundraiser!!
April 19th, 2009

Dear Friends and Family,

As most of you know I've participated in a walk to support the Scleroderma Foundation and my friend, Tara,for the past 3 years. This year, we're doing things a little different.

We've teamed up with the folks from 831 Photography and are doing a Photo Shoot to help raise funds for the 2009 Stepping Out to Cure Scleroderma walk.

I realize that in these economic times everyone is watching their pennies, but this is a chance to support a great cause and to have an opportunity to sit down with a professional photographer. It's the perfect time to get those family pictures taken you keep putting off.

Don't forget Mother's Day is May 10th! These pictures will make the perfect gift!

The photo shoot will start at 10:40am. Time slots are every 20 minutes until 6:20pm. There is a $30 session fee to reserve your spot, at the shoot you will receive a code for $30 in free prints, making the actual session free. All money raised, from the session fees to any additional prints, will go to support the Scleroderma Foundation.

To reserve your time send me an email. Once your email is received you will get an invoice from paypal and a confirmation of the time slot you are assigned to. All time slots are first pay, first serve. I expect these to go fast, so please sign up quickly.

We want to make this a huge success for Tara and for the Scleroderma Foundation, feel free to forward this on to friends and family!

And as always, to learn more about Scleroderma please visit:

Thanks so much!

P.S. If you'd like to make a donation but can not make the photo shoot, let me know as our official walk fundraiser page will be up soon!

1 comment:

Anonymous said...

Hi, there
I got an alert for your msg since it mentioned scleroderma. I am a 44 year old mom of two boys. I was diagnosed with diffuse scleroderma (the worst kind) two years ago. Since then I have done fabulously on Cellcept (an immunosuppressant). I am writing to ask if your friend has tried cellcept. I don't know where you are located but so many rheumatologists know nothing about scleroderma and don't know to try cellcept. It does not work for everyone, but it is worth a try if she has not done so yet. She/you can email me for more information if you like.

Good luck!